Resources for Families & Caregivers

October 29, 2024

Journey of a mother and child with Spinal Muscular Atrophy (SMA)
A Story of Love, Strength, and Resilience

We’re honored to share the journey of our MDAS member, Shu Wen and her son Devdan, who is living with Spinal Muscular Atrophy (SMA). Through their powerful story, we hope there will be greater awareness of SMA and that any others who are living with a similar situation to be empowered as well.
May 11, 2018

Muscle Disease – A Guide

May 11, 2018

Seating Goals for a Child with Muscular Dystrophy

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