Playing dual roles of caregiver and mom is a challenging feat but Karen doesn’t let that slow her down. Filled with optimism and a zest to help encourage greater awareness of MD to the general public, Karen shares her words of insight about her journey with MDAS.
1. What are you most grateful for in MDAS?
MDAS has been very helpful and supportive to our family as a whole, not just to Gareth only. Most importantly, it has rendered a lot of support and help to Gareth in pursuing his dream in sport.
2. How has being with MDAS changed yours and your family’s life?
MDAS has become part of our life since joining the organisation in 2014. Gareth is able to take part in all the activities organised by them, and when he is out with MDAS for the activities, he is well taken care of by the staff and volunteers. I do not have to follow him, thus I will have time to run errands, work and spend time with my younger son.
3. What is your favourite programme/activity in MDAS and why?
Caregivers’ retreat is my favourite activity. It gives me a chance to take a break out of my norm. I get to rest and relax in a cosy hotel stay. I don’t have to worry about what to cook for each meal and I don’t need to take care of Gareth as he is enjoying his camp with MDAS. Also, I get to meet and catch up with other caregivers.
4. What do you think more Singaporeans should know about Muscular Dystrophy?
I think more educational videos or stories should be featured in the media to let Singaporeans have a better understanding of Muscular Dystrophy and differences from other illnesses. Also, the kind of help needed by a MD patient.
5. What is one thing you’d most like to do in life that you haven’t done yet?
To bring Gareth on a trip to a western country to see snow.